Hope

hope that no matter what difficulties arise in family, health, or finances, a family can survive it and get to the other side. Don't ask me to answer 'how' in one response, rather it's an evolving idea. Solutions present themselves as you go along the path. As you seek the thing it is you want to achieve, so will an idea come to you. I do not attribute it to a god or a religion, though I may have one or both of those. This is life. Hope. Live with me,... 

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Simply Peachy

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Entries in family (25)

Wednesday
May012013

Be Encouraged

Our G+ community wants to bring you positivity, so we created the “Be Encouraged” section. A place to find thoughts and meditations. Perhaps a place to find a new focus. We believe in Post Traumatic Growth...

Sign in to join here

Sunday
Apr282013

Mazel Tov! 

Our last child reached a milestone, one which all of our children have gone before him in every 3rd grade year and reached, receiving their Siddur. He has worked toward this goal learning Hebrew and reading some of the most important prayers we know in our tradition. I cannot believe how quickly this time has come about. We loved gathering together with everyone to honor the students just starting out and preparing a foundation for their future. Of course, I cried just to be there, and experience our last Kabbalat HaSiddur, well for a little while at least. Grateful to our Rabbanim and leaders, teachers and community, for bringing us to this occasion. With a full heart...

Wednesday
Apr102013

Lessons for Heroes and Healers

Lessons for Heroes and Healers is a Google plus community that teaches and supports. Learn tips and share ideas on how to heal from combat experiences.

Rebuilding is a community wide event, this platform is appropriate for anyone involved in bringing about recovery from combat experience: veterans, spouses, family members, and community helpers alike. This is not a catch all group collecting everything that is out there, rather a carefully curated source to filter some of the noise, and share what is the most effective. 

We believe in Post-Traumatic Growth.

Some categories include: 

Getting Organized: Foundational tools to help you set up and prepare for the journey of advocacy and recovery.

Read, Watch, Learn: An articles section that will hold a cache of news, scientific research, opinion, and healing method ideas, all which lend toward growth and recovery.

Gather Your Resources: This section will share organizations, companies, and foundations great to get connected with. We are not meant to do this alone, allow support from others in your life. 

...and more. See for yourself today, contribute to the collective voice what has truly helped you. Do join us. 

Monday
Mar182013

It's Spring in Texas, That Means Camping...

Thursday
Feb212013

Caregiver Reversal Tips

My helper hero

Caregiver reversal: this is what happens when one who is normally being taken care of needs to temporarily return the favor, if possible, to the maximum of his or her ability. This began happening to my husband last month. 

I found myself flat on my back for more than a few weeks recently, unable to drive, clean, work, mother....just done for and useless. So, what is an injured veteran and his service dog to do with such a situation? I mean, who's gonna be overly responsible for him if I'm off the job?

Turns out, he's going to have to. Here's some ideas if this happens to you. Remember, bring prepared is better than being surprised and clueless-

1. Talk to your caregiver, now patient, and remember to use actual words.

2. Don't forget to reach out your hand and touch the other person once, maybe twice. It's ok, you can do this. 

3. Try to leave the corner of the room long enough to take your caregiver a splash of water.

4. If you feed and water them, they might start to feel better.

5. Bravely text or email a friend of caregiver to help.

6. Breathe in, breathe out. 

I kid, I kid... at the beginning of our recent role reversal he did seem a little panicked. But, any man on the planet probably would be. In all actuality, he was more than amazing. He did ask for support and took such great nurturing care of me. I am still on the mend, but so much better. More than anything, I am amazed at what he accomplished. This was, despite the unfortunate event of having surgery, the most healing experience of my lifetime to have him at my side as I recover. Thank you lovely, big, strong, caring, veteran husband. You completely rock. 

Sunday
Jan132013

Shaky Ground

I stand somewhere between comfortable abuses and freedom of voice. And I have no idea in this gray space what is right or wrong. 

These are the moments in-between where guessing and assuming reign. Also where questioning my own actions play a one track repeat in my head over and over and over. It’s insidious. 

For years, many years even previous to my marriage and family, this has been boiling. I’ve run and protected myself from past immediate family, seeking safety. Emotional and physical. And the reasons I ran seemed minimal, but perhaps they weren’t so much. And this boiled, and my choice in a husband wasn’t their favorite, and this boiled,… and I had children met with family expressions of disappointment,.. and this boiled. And we struggled and did not do things in the proper order as they saw, and this boiled. And my husband fought a war, and came home a mess, and this boiled. And their feelings about him not being the perfect pick were validated as he fell into turmoil with combat PTSD and TBI,.. and this boiled. And they did not believe me, and those that may have believed me didn’t seem to care. And this boiled…until one day he started getting better. Then “we” started getting better, and I learned so many things about us, myself, our kids and families, as we had struggled. Yet this still boiled. I learned I deserved to be treated well, and my husband deserved the same. And what was happening was they were wanting us to meet all their social expectations without accommodating or even beginning to try understanding our disabilities. And if we did not meet those, we were shamed by them. Thought less of, and put further in a corner. 

I finally decided I was tired of showing up to gatherings treated as the loser. The family member who married “that” guy. The ones who forgot to mail a gift or could’t drive out of town to get together. The ones who forgot to write back or make a call. Ok, fair enough. And I felt as if they thought they were doing us a favor to invite us. We were tolerated, not welcomed. Of course our kids are magical and loved, but I found I was no longer able to step into the same room with these people assuming how they felt, determining this by the energy I received from them. Hell, I am not sure I could ever do that well. The utter silence. The culture of unwelcoming was running rampant. By this time both of my siblings had ceased communication with me, citing their reason as an unreturned email that one time back a long time ago. Really? If that is all it took, there was nothing of a relationship there to hold onto anyway. And really, there wasn’t.

I finally learned, as friends treated me with more compassion and concern than exteneded family through these difficult years, that I was thinking this through all wrong. I learned I was trying so hard to impress and show up for the wrong people. I’ve spent years silent, coping with the horrors of my husband and daughter’s disability alone, without family concern. My husband and I go through this weird PTSD thing when we have to go over to a party or holiday, and it causes us heartache and turmoil. Especially him, though I think he handles it so well, could you imagine? Always showing up somewhere people make it kinda' obvious they hate you? And willingly repeat it? I don’t want him to have to do that any longer. And I don’t want to feel the horrible way I feel after a get together, always re-realizing how much I don’t matter to them as a person. As a sister or daughter. It is all so fake. Follow the protocol of showing up, and shut up is what's expected...”We get to treat you however we want, you are lucky we let you be here. We only think your kids are ok, you suck. You’re here cus’ we want your kids here. You are lucky you are in this family.”

Guess what, no I am not.

I finally said NO this weekend. I won’t go to the next kid's birthday party, because I don’t want to feel the tension that builds up before I go, and the depression afterward. I don’t want to be reminded how much everyone disapproves of my spouse, and dishonors his experiences in the war and in health. I want to save my energy to be happy for my own kids and spouse. And I feel bad for my kids not going, and I’m turning this around in my head. But enough is enough. I have to stand up and say it is not ok anymore. I want to be with those who care, those who possess understanding and compassion for us. Those who are on our side, not against us. Those who have love. 

images by Brave Girls Club

Wednesday
Dec262012

Be Understanding of Your PTSD Family Members and Friends

"I think Christmas is one of the most difficult times of the year for a PTSD family. The one with PTSD is forced to put him or herself into certain trigger situations, simply because it is socially expected of them. Even though most extended family will not try to accommodate their disability. The spouse is then forced to act as a bumper to anything that will trigger them and usually fail because the extended family makes it impossible for success. All the spouse wants is a happy holiday and has waited years for it. Said "failure" to control the environment causes lot of stress on the couple. Please know I'm thinking of each and everyone of you. Both sides of the partnerships. We all deserve a measure of peace." -Shannah 

Wednesday
Dec192012

Gratitude

It's a humbling and equally invigorating experience to have people pour into our lives. I am so grateful. Beginning to feel nourished to grow and pay it forward...
Thank you to the people.

Thursday
Nov152012

Swimming in Mud

In the Winter of 2003 we had our last Shabbat together the day before he left. I said goodbye with three little ones, Amariah being brand new. I found out why he had gone on March 19, as I watched the media display video footage of "Operation Shock and Awe" take place bombing Baghdad, a day after ground forces had already began a "running start" offensive towards the city. My husband being a part of those forces as an airborne infantryman in the 101st. One of the worst things about the war for me back home, besides the obvious fear of loss and injury, was the incredible amount of media availability in conjunction with the lack of personal communication as he fought. I let myself play the guessing game every time something happened on the news, until finally I learned to shut it off and just go play with the kids until he returned. Baghdad was seized, the United States declared victory, and on the 1st of May major combat operations ended. He would be deployed for an undetermined amount of time, estimating 18 months.  

Come June, as I was caring for the kids at home, I noticed our third daughter not meeting her growth development milestones. Within the next week I would learn she had extensive brain damage and was diagnosed with left hemiplegia spastic Cerebral Palsy, severe developmental delay, epilepsy, and cortical visual ipairment. I suddenly had no idea if she would ever walk, talk or be able to properly think. I felt alone and devastated in this discovery. And I was faced with yet another moral question: Do I inform my husband whom is fighting in Iraq? Shouldn't I, as the "strong military wife," suck it up and let him fight, telling him later when he returns? This became an insurmountable idea to bear alone, so I called command for advice. They directed me to alert the red cross immediately, so it was the next phone call I made. I found out they were going to send him home because of the diagnosis, to assist with the testing Shelemyah would soon undergo. Within four days of that initial phone call I was picking him up at the Nashville airport and bringing him to our house on post. FOUR DAYS. At the time this was relieving news to me, surprising, but welcomed, which would later turn into not the best transition time for him. From that point on he hit hit the ground running, just as he was trained to do. except this time, his mission was to help his baby girl. Shortly after he returned, his Army contract ended, and we made the new decision to leave the military given the experience of war, and headed to Austin. He was most certainly one of the first soldiers back from Iraq, there was no reintegration process in place at Ft. Campbell where we were stationed, and no family awareness training given to us.

We thought the worst was behind us once he was home, but the next 8 years proved me wrong. I mean, I saw him arrive in one piece, he was thankful and happy to be back from the war, and he looked like he was unharmed. I was not aware of what I could not see, and embarked on a psychological journey of questioning, turmoil, and searching to find out what was so different about him. I know now I was not prepared to help him transition to civilian life on my own, but I had no choice. As we helped our daughter through all of her therapy and medical care, we were slowly finding out his diagnosis of post traumatic stress disorder, traumatic brain injury, and depleted uranium exposure, with much confusion and denial. As employment became harder and harder for him to maintain, and symptoms became more difficult to manage, our family was collapsing financially and relationally. Author Cynthia Orange says it this way, "Living in a household affected by trauma and PTSD is a bit like trying to swim thorough mud." Indeed it felt just this way, and worse. The foundation of what I thought our family would be had fallen out from beneath us. He looked at death differently, saw life convoluted, and I thought I was going insane. The war experience sent shock waves throughout our entire family system. It changed us all. 

I tell you this story to express how community, for us, helped us to somehow sustain and later begin the recovery process. And I tell you so others out there might learn, isolating yourself because of the shame you feel going through these circumstances, is not the answer. 

I walked into our new synagogue community sometime in the year of 2005… Though VA turned us away, we found community here. When our lights were shut off repeatedly, the synagogue still had power. when we could not afford food, we had a meal to look forward to on Shabbat. Through 3 foreclosure proceedings in the last four years, and a current one because of late HOA dues, their building gives us a sense of stability in shelter. When family did not understand our struggles and had finally gone silent, our clergy still showed concern for our well being. When neighbors stopped being so neighborly because we were different, this community still accepted us. We struggle to keep our vehicle month after month through 10 very recent job losses, and juggle how to meet living expenses and figure this all out. Though through all of this, the consistency of community strengthens us, even gladdens our hearts with joy. We also recently reconnected with the veteran community last December at an event to provide familes respite. Since 2003, this was the first time my husband met another combat infantry veteran. He needed that greatly. Organizations are showing up, not affiliated with the VA, to help fill the gaps of helping servicemen and women and their families, and it is making a world of difference. We felt so much more normal seeing and communicating face to face with other families like ours. 

Finally, since our initial application in 2004 to help my husband, the VA documented and compensated for some of his disabilities in August 2010, 6 years later. I am astonished that our family has made it this far still intact, and our marriage is flourishing with a new found love, yet I'm equally appalled at the things we have had to fight for to keep us afloat. 

And as Cynthia Orange also says about that mud, "With the appropriate help, love and support however, families can find clearer water." I believe we are finally beginning to see the clearer water just off in the distance.

I leave you with one last thought from James Baldwin about rebuilding our lives, he says: 

"For nothing is fixed, forever and forever and forever, it is not fixed; the earth is always shifting, the light is always changing, the sea does not cease to grind down rock. Generations do not cease to be born, and we are responsible to them because we are the only witness they have. The sea rises, the light fails, lovers cling to each other, and children cling to us. The moment we cease to hold each other, the moment we break faith with one another, the sea engulfs us and the light goes out. " 

Let us always be here for one another, and let us be here for our countries veterens.  

Thursday
Oct252012

Triggered

What happens when you combine combat experience, mourning over a recent death of his father, troubled childhood, years of marriage, four children, a special needs child with multiple severe disabilites, no college dregrees, all your military plans out the window due to war injury, multiple job losses, and trying to keep a house over your head? A daily surprise that we are still here. 

There are many things aggravating my husband this week, and by that I mean triggering his PTSD and abilty to cope with the normal circumstances of life. As my daughter says "It's annoying" and later asked "Why haven't you run away?" 

On so many levels, Blurg. 

{photo via overflowing}